I can’t do anything about it.

I can’t fix it.

I can’t make it go away.

I don’t have clear answers.

All I can do is read, research and be here for the hugs, tears, disappointment, and anger.

POTS is such a frustrating disorder. It impacts everyone differently. Symptoms, impact of symptoms…

Have you heard of it? I’m guessing probably if you’ve found this blog.

Postural Orthostatic Tachycardia Syndrome.

It’s a central nervous system disorder; it impacts blood circulation and circulation in the body is what makes it work. Both our teens have been diagnosed this year. It’s a relief that my research and what I thought was going on, is. But it’s so disheartening that this is what they have to deal with now.

Our son passes out frequently with five or more almost pass outs per day that he catches in time. He struggles to play sports and be active. The brain fog and fatigue he feels impacts his day to day.

Our daughter deals with daily brain fog, exhaustion, nausea, dizziness, and near pass outs. She struggles to play sports and exercise, swimming triggers an episode every time, but its one of her favorite pass times. When she gets excited it triggers her entire nervous system and takes something fun and exciting and she ends up hugging a toilet. At almost fifteen that is not where she wants to be.

As their mom, it’s so hard to watch. To encourage through the hard. To acknowledge this royally sucks, but also, we must learn how to continue living and find joy in life. Teaching their friends what’s going on for them, how they can support their friend and how to be sensitive about it.

So much is trial and error.

So much is trying again the next day.

POTS doesn’t come with a roadmap. There isn’t a clear fix, a straight line, or a guaranteed outcome.

Some days feel manageable. Some days feel impossible. And most days fall somewhere in between.

So we keep going.

We keep learning.
We keep adjusting.
We keep showing up.

Not because it’s easy. Not because it’s fair. But because they deserve a life that still holds joy…even in the middle of all this.

And if you’re in this too, feeling just as overwhelmed and unsure…you’re not alone in it.

We’re all just doing the best we can, one day at a time.

You’re not alone.

The Honest Middle